Abstract
Improved healthcare and social conditions have extended the lifespan of individuals with multiple sclerosis (MS), spinal cord injury (SCI), or traumatic brain injury (TBI). Understanding the realities of aging with an early-onset neurological disability is crucial for developing inclusive approaches to healthy aging, with social participation being a key modifiable health determinant. This qualitative descriptive study, part of a larger participatory research project, explores the lived experiences of individuals aging with an early-onset neurological disability and their perspectives on social participation. Semi-structured interviews were conducted with 24 participants aged 50 and older, living with MS, SCI, or TBI (n=8 per condition) in Quebec, Canada. Analyses were based on a mixed approach where the deductive portion relied on the Human Development Model – Disability Production Process. Aging with an early-onset neurological disability necessitates ongoing adaptations in various domains. Participants expressed the importance of adapting to evolving social networks, (re)discovering meaningful ways to contribute to society, and managing symptoms. Over time, participants described their identity as becoming more consolidated. While they did not define themselves solely by their disability, this aspect was integrated into their sense of self. For many, their condition even became a source of pride, contributing to a complex but cohesive identity. Social participation is influence by numerous factors such as involvement opportunities. Yet barriers such as stigma, limited access to information persist. By deepening our understanding of the lived realities of these individuals, this project will contribute to promoting a more inclusive vision of active and healthy aging.
Presenters
Mia LapointeStudent, Master, Laval University, Quebec, Canada Pascale Simard
PhD Candidate, School of Rehabilitation Sciences, Université Laval, Quebec, Canada Ann-Frédérique Giguère
Student, Baccalauréat en Psychologie, Université Laval, Canada Valérie Poulin
Associate Professor, Occupational Therapy, Université du Québec à Trois-Rivières, Quebec, Canada Ronen Ore
Student , Human sciences, Université Laval, Québec, Canada Samuel Turcotte
Professor, School of Rehabilitation Sciences, Université Laval, Canada Angéline Labbé
Laval University Megan Veilleux
Student, Baccalauréat en Psychologie, Université Laval, Quebec, Canada Manh Hung Nguyen
Postdoctoral Fellow, School of Rehabilitation Sciences, Laval University, Quebec, Canada
Details
Presentation Type
Paper Presentation in a Themed Session
Theme
Social and Cultural Perspectives on Aging
KEYWORDS
Social Participation, Active Aging, Social Impacts, Lifestyle, Neurological Disability
